Source: https://drive.google.com/file/d/1WeGAsso0y-zqa5ZcbuEgd1_qgbuIsCns/view?usp=sharing
Big Data
The amount of data is increasing exponentially. By 2025, 463 exabytes of data generated by people each day.
Ethics
Moral principles that govern a person’s behavior or the conducting of an activity.
Informed Consent
When individuals know
- How their data will be used
- Any risks or benefits
- Of any possible consequences
Informed consent- can be withdrawn at any time
- individual’s data must then be removed from the dataset
When is consent not required?
- Minimal risk for research which otherwise couldn’t be conducted
or- When an activity is designed to assure or improve quality rather than contribute to generalizable knowledge, in which case it doesn’t meet the Common Rule’s definition of “research”